Woman Born Without Womb, Cervix And V*gina Reveals Heartbreak Over Her Condition

19 Apr

A woman who was born
without a womb, cervix and
vagina has spoken out about
the condition which means
she’ll never be able to have
Joanna Giannouli, 27, was
unaware she had Rokitansky
syndrome until she went to see
a doctor after she hadn’t
started her period like her
other girls her age.
Medics discovered she didn’t
have a vaginal tunnel and sent
her for major surgery at the
age of 17 to create one in order
for her to have s*x.
Rokitansky syndrome, which
affects one in 5,000, means a
woman is born with an
underdeveloped or absent
womb, cervix and upper vagina
but have ovaries and external
genitalia and still develop
breasts and pubic hair.
The operation to create a
vagina was revolutionary in
Athens, Greece, where Joanna
lives, but it left her in a lot of
pain as the tunnel was ‘narrow
and small’ and she had to go
back to have the entrance
She says that after that she was
physically fine but emotionally
she struggled with the
condition, particularly with
‘abusive’ comments from
At one stage, when she was 21,
she was due to be married but
her partner broke off the
engagement when he found out
about the condition.
She battled depression, anxiety,
panic attack and struggled with
a stable relationship for years
after that and describes herself
as feeling ‘worthless’ and
‘damaged goods’.
Speaking to BBC, Joanna said:
“It steals your happiness, your
mentality, your chances of
having a good and stable
“It leaves you with a huge void
that cannot be filled, it fills you
with anger, guilt, and shame.”
But now 10 years on from her
operation she says that while
she still has her battles, she’s
not ashamed anymore as she’s
realised there’s nothing that
can be done to change it.
Joanna says she has been in a
loving a stable relationship for
the last five years, and her
partner has known about the
condition from the start and
accepts they may never have
She added: “I would love to be
a mother in some way, be it a
biological, a surrogate mother
or a foster mum. A mother is
not the one who gives birth but
is the woman who cares for a
However Joanna says that she is
living each days as it comes and
not making any plans for the

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Posted by on April 19, 2016 in Uncategorized


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